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Table 1 The minimum dataset

From: Developing a Dementia Research Registry: a descriptive case study from North Thames DeNDRoN and the EVIDEM programme

For all practices we will record Location (Primary Care Trust -PCT)
  Deprivation index score.
For all clinics we will record Specialist
  Clinic location
For other services we will record Location e.g. Nursing Home, Supported Accommodation, Elderly Mentally Infirm (EMI) home
  Key worker details
For all participants in the registry the following information (extracted from practice or clinic notes) is recorded where possible: Demographic details (name, date of birth, gender, marital status, first language, ethnicity, address, postcode, housing status, National Health Service number)
  Carer information (name, date of birth, gender, address, postcode, relationship to person with dementia)
  Practice details (name, address)
  Specialist details (name, clinic details)
  Cognitive status (date of most recent test and score)
  Functional status (date of most recent test and score)
  Behavioural/Neuropsychiatric status
  Investigations (imaging and dates)
  Specific dementia medication
  Co-morbidity (e.g. depression, CVD, diabetes)
  History of participation in trials/studies