From: Design and development of the Australian and New Zealand (ANZ) myeloma and related diseases registry
Pre-development Phase (0–6 months) |
• Secure funding |
• Finalise project plan |
• Establish Steering Committee |
Development phase (6–12 months) |
• Finalise data set and data dictionary |
• Web-database construction |
• Establish contacts at 4–6 pilot hospitals |
• Ethics submission at selected academic unit or central site and pilot sites |
Implementation Phase (1 year onwards) |
• Data collection commences at 4–6 pilot sites |
• Identify additional sites for inclusion in the Registry |
Expansion Phase (18 months onwards) |
• Ethics submission at additional sites |
• Data collection commences at additional sites |
• Test and develop new or improved measures of outcome |