Recruitment of representative samples for low incidence cancer populations: Do registries deliver?

Table 1 Reasons provided by treating clinicians for not providing consent for the registry to contact survivors.

Reason for refusal		n = 102	%
Survivors did not meet eligibility criteria n = 57 (56%)
	Not physically/mentally capable	12	12
	Diagnosis not appropriate	11	11
	<1 year life expectancy	9	8.8
	Survivor did not wish to participate	7	6.8
	Not in same state as registry	6	5.8
	Situation not appropriate	6	5.8
	Too ill	2	1.9
	Doesn't speak English	2	1.9
	Survivor unaware of cancer diagnosis	2	1.9
Other reason n = 45 (44%)
	Not current patient	36	35
	No reason given	7	6.8
	Clinician did not wish to participate	2	1.9