Table 1 Reasons provided by treating clinicians for not providing consent for the registry to contact survivors.
From: Recruitment of representative samples for low incidence cancer populations: Do registries deliver?
| Reason for refusal | n = 102 | % | |
|---|---|---|---|
| Survivors did not meet eligibility criteria n = 57 (56%) | |||
| Not physically/mentally capable | 12 | 12 | |
| Diagnosis not appropriate | 11 | 11 | |
| <1 year life expectancy | 9 | 8.8 | |
| Survivor did not wish to participate | 7 | 6.8 | |
| Not in same state as registry | 6 | 5.8 | |
| Situation not appropriate | 6 | 5.8 | |
| Too ill | 2 | 1.9 | |
| Doesn't speak English | 2 | 1.9 | |
| Survivor unaware of cancer diagnosis | 2 | 1.9 | |
| Other reason n = 45 (44%) | |||
| Not current patient | 36 | 35 | |
| No reason given | 7 | 6.8 | |
| Clinician did not wish to participate | 2 | 1.9 | |
