Skip to main content

Advertisement

Table 2 Characteristics and consultation strategies among cohorts providing additional information

From: How are European birth-cohort studies engaging and consulting with young cohort members?

Region Focus Date of first enrolment Size of cohort (rounded to nearest 500) Website Other strategies to engage participants Consultation with cohort members/parents
Northern Europe Narrow Pre 1990 1,000 Yes Photo exhibition -
Northern Europe Broad Pre 1990 12,000 Yes Package of individual health outcomes -
Northern Europe Narrow Pre 1990 500 No - -
Northern Europe Narrow Pre 1990 9,500 Yes Package of individual health outcomes -
Northern Europe Narrow Pre 1990 1,000 Yes Personal letter Space is provided on questionnaires for feedback
Engaging the Media
Dissemination through meetings
Northern Europe Narrow 1990-1999 1,200 No Newsletters -
Northern Europe Narrow 1990-1999 <500 Yes Personal letter Space is provided on questionnaires for feedback
Engaging the Media
Dissemination through meetings
Northern Europe Narrow 1990-1999 500 Yes Personal letter Space is provided on questionnaires for feedback
Engaging the Media
Dissemination through meetings
Northern Europe Narrow 1990-1999 1,000 Yes   -
Northern Europe Narrow 1990-1999 10,500 Yes & Facebook Newsletters One-off informal consult
Northern Europe Broad 1990-1999 14,000 Yes including areas for participants & Facebook Newsletters Advisory group of young people
Events
Online forum for parents
Northern Europe Narrow 1990-1999 1,000 Yes - -
Northern Europe Narrow 1990-1999 97,000 Yes including pages for children Internet Questionnaires Provide questions/space for feedback
Northern Europe Broad 1990-1999 3,000 Yes News articles & media -
Northern Europe Narrow 1990-1999 8,500 Yes & Facebook   One-off informal consultation used
Northern Europe Narrow 1990-1999 <500 Under construction Share media clippings at clinic visits Open ended questions on survey for feedback purposes
Northern Europe Narrow 2000-2009 <500 Yes Personal letter Space is provided on questionnaires for feedback
Engaging the Media
Dissemination through meetings
Northern Europe Narrow 2000-2009 500 Yes Personal letter, media, Space is provided on questionnaires for feedback
Dissemination through meetings
Northern Europe Broad 2000-2009 19,000 Yes   Not so far, but in planning
Northern Europe Broad 2000-2009 1,000 Yes Newsletters Informal parent group
Northern Europe Narrow 2000-2009 500 No - -
Southern Europe Narrow 2000-2009 500 No Newsletters -
Parties
Calendar
Birthday cards
Northern Europe Broad 2000-2009 2,000 Yes Newsletters -
Southern Europe Broad 2000-2009 7,500 Yes & Facebook Newsletters, Email, online questionnaires  
Northern Europe Broad 2000-2009 8,000 Yes Yearly event Questionnaires piloted, but this is not considered consultation.
Northern Europe Broad 2000-2009 1,500 Yes Information event planned -
Northern Europe Broad 2000-2009 8,500 Yes Newsletters Advisory Group for Young People
Northern Europe Broad 2000-2009 11,000 Yes Newsletters Advisory Group for Young People
Eastern Europe Narrow 2000-2009 500 No - -
Northern Europe Narrow 2000-2009 3,000 Yes including pages for children Newsletters and media, online questionnaires used -
Northern Europe Broad 2010+ 6,000 Yes Yearly event Questionnaires piloted, but this is not considered consultation.
Northern Europe Broad 2010+ 20,000 Yes including pages for children - -